My content has heavily focused on the diagnosis, treatment and living aspects of life with a condition like this since I began posting to YouTube in 2017. This has not only helped a lot of other people with diagnosis, but has helped to provide comfort and ways of coping for thousands of subscribers and viewers. My goal in the future is to advocate for more accessible treatments for those living with poorly understood skin conditions like Aquagenic Pruritus. However, because my own health and symptoms are still at an unmanageable stage, I haven’t yet had the opportunity to campaign to my full potential yet. 

I have undergone over 6 years of free medical treatment under the NHS in the UK, but nothing they were able to offer eased my pain even slightly. I have now exhausted all free treatment available to someone with this condition in the UK, so I must now begin funding my treatment privately with a new doctor outside of the UK, who is able to provide new and different treatment options to those available in the UK.

In March 2021, I was accepted for private medical. treatment in Germany, where I will have to find the funding to undergo the relevant testing, diagnosis and treatments I may need for such a debilitating disease.